APPEL AUX DONS / FUND RISING
Operation 'For your eyes only".2021.
My dear friends,
First of all, I hope you are doing well and that the disease has given you some relief lately.
The time we are living in is very difficult and it is imperative that you take good care of yourself.
I am pleased and honored to announce that this Sunday, August 22, 2021, we are launching our 10th international donation campaign for research into birdshot disease.
It will last until December 31, 2021 and is absolutely essential for the proper functioning of the association.
Thanks to your donations, we have been able to advance teams and research on birdshot-type retinochoroiditis:
- A research assistant is now appointed full-time within the Cochin hospital in order to be able to process the data collected from the increasingly numerous patients, and more and more present during our birdshot days organized for more than 10 years. years.
- There are new storage tanks for the blood bank dedicated to the disease.
- In addition to Prof. Brézin, Monnet and Cohen, 3 new international researchers are dealing with the disease:
o Dr Jonas KUIPER doctor in immunology / ophthalmology at the University of UTRECHT in the Netherlands. He has already published some papers in official journals.
o Prof Gary HOLLAND of the University of California, USA, renowned ophthalmologist.
o Prof. Jennifer THORNE from the University of Baltimore, USA, ophthalmologist.
o Prof. Levinson (UCLA) has retired and Prof. Cohens, although retired, remains Professor Emeritus and is a globally recognized specialist in the genetics of the disease.
- We work with APHP, ORPHANET, OPHTARA, SENSGENE.
We have created an interactive map of all hospitals and specialist doctors in over 30 countries around the world. We are to date at 145 hospitals and more than 200 practitioners, specialist in birdshot, and treating one of our members. To date, it has been used more than 8,500 times!
Regarding communication with all of our members, we now have more than 2,500 ophthalmologists, professors and researchers in immunology, who follow us and send us the latest news, on social networks (Facebook, Twitter, LinkedIn, Instagram ) They are represented in more than 60 countries around the world.
There is an 84-page downloadable booklet (Fr / Eng) containing information on the disease.
Our website is regularly updated and has received more than 45,000 visitors over the last 12 months.
We have a disease support group on Facebook.
We have organized many LIVE programs on the networks in order to answer the many questions of our members, sometimes with guests specializing in a field outside birdshot. (Ex: sophrologist, alternative medicine, para-medication, Tutorials…).
All our videos are visible on our HORUS TV channel, on YouTube.
We organize many activities to promote the association through my students who are happy to invest in the selfless goal of moving us forward. (In 10 years we have organized more than 100)
Finally, we will organize, as the Hospices de Beaune are doing, an auction specializing in champagne, at the end of 2022, with the greatest Champagne houses, bearing in mind that the latter will become, in the future, a unmissable and recognized event.
As you can see, your donations are extremely important and every euro is useful.
Of course things are progressing, and we are doing everything so that we can find a solution as quickly as possible to this disease which is eating away at us.
I wouldn't be able to give you a date when we will have found a solution to our ailments, but what is certain is that you can count on all my will and energy to make it happen.
As you know, we are not, for the moment, eligible for state subsidies (it is not for lack of trying with Professor Brézin), who still considers that our cause must come after others, more important.
This is why I am counting on you to help us and thus "invest" in our future, so that it is bright, not dark.
We are an approved 1901 law association which allows you, if you are an individual, to deduct 66% of the donation from your taxes, and 60% if you are a business. (Within legal limits).
We celebrated our 10th anniversary on December 11, 2020.
Together, let's fight against disease!
Take good care of yourself and your loved ones.
- Horus birdshot asso Paypal link: https://www.paypal.com/donate?token=yujOh4ZoBPrdiP4S6BkhQypLCHJJKtYYLnnHkSwOeXA82kP4C4Bqx-lzQ7D3fYUHPmIj0yh6
- Facebook page: asso horus birdshot / donate: https://www.facebook.com/ASSOHORUSBIRDSHOTLAPAGE
- By check to:
o Association Horus birdshot, 13 rue des terre brûlées 51390 Gueux.
Thanks in advance.
faire un don par carte bancaire
cliquez sur l'icone PAYPAL et suivez les instructions
deduction de 60 % des impots
merci de votre soutien
FAIRE UN DON A HORUS BIRDSHOT
1/ PAR CHEQUE A L'ORDRE DE :
ASSOCIATION HORUS BIRDSHOT
A L'ATTENTION DE S.MIGNON
13 RUE DES TERRES BRULEES
2/ DIRECTEMENT PAR CARTE BANCAIRE
SUR NOTRE COMPTE SECURISE PAYPAL (asso horus birdshot)
(cliquez que les icones Paypal du site et vous irez directement sur notre page association horus birdshot, vous n'aurez plus qu'à lire les instructions notées)
UN RECU VOUS SERA ENVOYE PAR COURRIER DANS LES DEUX CAS
MERCI ENCORE DE VOTRE SOUTIEN
Deductions fiscales 2019
66% du montant de votre don réalisé en faveur de l'association Horus birdshot sont déductibles de vos Impôts sur le Revenu, dans la limite de 20% de votre revenu imposable. Suite à votre don, vous recevrez votre reçu fiscal vous permettant d’attester de votre don auprès de l’administration.
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