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"LIVE" SUR FACEBOOK LE DIMANCHE 24 NOVEMBRE 2019 A 18H00 (heure Française)

28 09 2019 , sunshine tour - Golf

Après une dernière journée dans le par (72) notre jeune ambassadeur Horus birdshot, se place à une très honorable 29eme place à Port Elisabeth , sur le Sunshine Tour en Afrique du sud .
Bravo Riekus Nortje !!!!

28 09 2019 , Aurélie Cervesa cherche de l'aide pour un evenement- Montpellier.

Evenement Horus birdshot Montpellier -

Aurélie Cervera, est comme nous toutes et tous, une malade du birdshot. Malgré tout, à 34 ans, elle continue à éxercer son sport préféré: le football.
Elle habite à coté de Montpellier et souhaite organiser un evenement pour l'association Horus birdshot en Mai 2020.
Elle aura besoin d'aide et du soutien des malades de cette région. Aussi, je vous remercie par avance de bien vouloir lire les messages qu'elle m'a envoyés et , peut etre, vous donneront envie d'être à ses cotés.
Amitiés à toutes et tous,
Sylvain

September 3, 2019, genetic research on the birdshot disease is about to give its first results -


VERY IMPORTANT: INFO HORUS BIRDSHOT -
September 3, 2019, genetic research on the birdshot disease is about to give its first results -
At the end of 2018, I announced that we had concluded agreements with an American laboratory and that all this required several phases:
1 / repatriate the 500 blood samples from Reims to Paris
2 / transfer to a particular storage tank
3 / Agree on the research protocol with the labporatoire / Transfer the samples to the United States
4 / Sequencing of these 500 samples
5 / Analyze the results of this sequencing, which is the longest and most difficult process.
I exchanged yesterday with Professor Brézin on this subject, and I am happy to confirm that the 500 samples have been sequenced, and that we now begin the analysis and conclusions.
This research should provide us with insights into future treatments, at least hopefully reasonably. However, you know that the disease does not have only genetic factors (only 95% of the patients are HLA-A29 +) but this must logically make things progress considerably.
I will keep you informed of future essential information on the subject.
Sincerely,
Sylvain MIGNON
Pdt HB.

TRISTESSE: Our mascot Bibi left us in July 2019.


It is with great sadness that I announce that Bibi (his real name, Extra baby of the sacred tipi) noous left, after fighting with courage and good humor, for more than 12 months, against cancer.
She left in the highest dignities, calmly.
Our other Jazz mascot being inconsolable, we decided to take a second mascot, Plume, a young border collie of 3 months and a half that brings us the joy and the comfort that brought us Bibi.
We will never forget it as it was exceptional.


ETAT DE LA RECHERCHE SUR LE BIRDSHOT 06/2019

Des recherches génétiques néerlandaises et espagnoles récentes sur Birdshot ont révélé que des modifications des enzymes "ERAP" - molécules qui interagissent étroitement avec HLA (-A29) dans le système immunitaire - peuvent expliquer pourquoi certaines personnes atteintes de HLA-A29 risquent de développer Birdshot. Sur le plan fonctionnel, l'activité des enzymes ERAP est souvent «déséquilibrée» dans Birdshot. Les chercheurs suivent actuellement ces études pour mieux comprendre comment le HLA-A29 et les PIU affectent la communication du système immunitaire dans les yeux. 
Merci à Jonas Kuiper pour ce post.

C'est technique et intéressant
Sylvain
LIEN 

CAMPAGNE DE DONS 2019 -

CAMPAGNE DE DONS 2019 -

CAMPAGNE DE DONS 2019 -

Riekus NORTJE !! "The beautiful story" - APRIL 2019

INFO HORUS BIRDSHOT -
News from our ambassador from South Africa, Riekus NORTJE !!

"The beautiful story"


Riekus is a 28-year-old man with a promising future in professional sports. Indeed he is currently a professional golfer on the "Sunshine Tour", one of the most famous circuits in the world. Africa di Sud has already given us many exceptional players (Ernie Els, Retief Goosen, Louis Oosthuizen, ...) but especially a legendary player: Gary Player!
For experienced golfers, these names are well known and recognized, for the uninitiated, we can reasonably compare Gary Player to Zinedine Zidane, one of the best players in the history of his sport!
So we can say that Riekus was born in a country of talented sportsmen.
If health is an asset in this demanding sport, it is not the same for his father, Ferdie Nortje, suffering from the disease of the birdshot apparently ill-treated and because of which he lost a good part of his vision! A misfortune never arriving alone, his uncle, the twin brother of his father, has just learned that he was suffering too!
It is these different factors that have driven Riekus to become our media ambassador, and especially the birdshot ambassador to South Africa and wherever he proudly represents his national colors.
We will follow him as he moves. We will follow his results and, all together, we will give him an extra strength, which, I am sure, will help him even better, to be realized in his difficult career of professional sportsman (I know something !!) but still, in his life as a man!
Thank you again Riekus, and we wish you all the best in the future!
Congratulations to Ferdie, for giving such values to his son!
Thank you all for encouraging and following Riekus.
friendships
Horus Birdshot Mignon Sylvain
#birdshot

LInk : Riekus Nortje

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COMMANDE DU LIVRET HORUS BIRDSHOT SUR LA MALADIE DU BIRDSHOT DANS LE MONDE -
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Amitiés à toutes et tous,

Sylvain.