birdshot horus

Association law 1901
for a cure the disease of Birdshot
French society dedicated to the birdshot disease

OCTOBER 8, 2018: RESEARCH IN GENETIC FOR BIRDSHOT AHEAD WAS APPROACHING!


Monday, October 8, 2018: yesterday I was, yesterday, with the Pr Monnet in Cochin Hospital and I have confirmation that the first part of the procedures put in place for the sequencing of the genome of 350 patients Birdshot, have started successfully.
The first was to find a lab that could make us this work, it is made formally. The second to repatriate all of our bank with the blood of our samples of the sick of the birdshot,'s now done it. The third phase will begin shortly with, we hope all and all results allowing us to see the future with a little more serenity.


Sylvain cute
Founding President
Horus birdshot Association
disease of birdshot.

research on the disease of birdshot ahead in 2018 - a big step forward!

HORUS BIRDSHOT - FIRST INFO!


January 16, 2018-




I was yesterday with the Pr Brézin hospital Cochin (Paris, France) and I am pleased to announce that we have negotiated with an American company, 300 sequencing of DNA from sick of birdshot!


It's a big step forward, we worked on it for years, and even if we had already started an embryo for research with 4 genetic tests (each test costs about $ 5,000!), we can now say that the birdshot research will actually start this year.


We had for some time a stock of 300 samples valid for this action, but, not the money to finance it. Present, and current 2018, we can already move on the first sequence.
This is a major step forward that offers us prospects for the coming years.


Because Yes, we should not expect results immediately, it is a study that will last months, or even years, but it will be finally launched this year!
I will keep you abreast of the progress of the things as you go along.


Friendships and health to all.



Sylvain cute
Founding President
Horus birdshot Association
disease of birdshot.

Nos soutiens

Everything what we fund is done completely privately, because although we are an association law 1901 approved, we have no public funding.
We need you, indeed.
Horus birdshot is:
-100 partner hospitals in nearly 25 countries
-130 doctors
-Contacts in more than 50 countries
-More than 2000 people who follow us on social networks
-More than 25000 visits on our website
-Of genetic research on the birdshot since November 2018
-Ophthalmologists, immunologists, researchers, specialists in genetics
-Partners
-Members
-Donors

horus birdshot Association
Facebook: horus birdshot asso

This site is dedicated to the Birdshot - disease type rétinochoroïdopathie orphan blinding.


This web site is dedicated to the birdshot disease. blinding disease.

Welcome all,.

My name is Sylvain, I am 50 years old and I have the Birdshot type retinochoidite.
It's a disease orphan blinding. In 6 years, I have lost 3/4 of my vision...

I am an officer of companies, painter specialized in portraits and high-level sportsman. This disease has been detected to me during a trip to South Africa and I have no certainty about the future of my eyes.

I created this association in order to help our scientists to discover a treatment to treat this disease. Indeed I wouldn't end up blind without thinking that I have tried everything to cure me.

If progress is being made through our action, then I can say that I have not fully served has nothing in this society.

We already have the support of personalities such as Mr. and Mrs. Sarkozy, Mrs Line Renaud, Mr Gilbert Montagné, Ms. Chantal Ladesou.

We have especially accreditation of hospitals taken through the Pr Brézin hospital Cochin, the Professor Cohen, immulologue, as well as the Pr Levinson of UCLA.

This site and this association has also been created to allow people with this orphan disease answers their questions, they could have names has contact addresses for health care, the names of teachers who are members of honour of this association in the best hospitals of France and the world, the best care as well as all the accessories that can improve their lives (glasses, filter glasses, specific hardware...). It is a disease that can eventually be expensive! Because everything is not refunded.

I hope that we will find as well a solution to our ills...

I encourage you to go on facebook (link alongside) to regroup and discuss


Sylvain
Founding president.

HORUS-BIRDSHOT
Association law 1901
declared in the prefecture
Reims - 22/11/2010
approval No.: W513001893

CFA PASTOR 2018

soutenance mars 2018

PASSAGE RADIO 31 JANVIER 2018

https://www.facebook.com/rjrradiojeunesreims/videos/1721903291164348/

ARTICLE DU JOURNAL L'UNION

NEWS DU 23 OCTOBRE 2015

BIRDSHOT UVEITIS SOCIETY

Nous travaillerons également avec le "BUS" association anglaise quie s'occupe des uvéites de type birdshot.

BUS

Welcome to the website for the Birdshot Uveitis Society (BUS), a support group for people with the rare, hard-to treat, autoimmune, posterior uveitis called Birdshot Chorioretinopathy. We are part of UIG, (the Uveitis Information Group), a registered charity, No SC028439.

A

Birdshot Uveitis society

HORUS TV

RETROUVEZ LES VIDEOS HORUS BIRDSHOT

BIRDSHOT CONFERENCE

actions January 2019

actions January 2019

Article health journal January 2019

SICK UK AUDIO TESTIMONIALS

novelty 2018 booklet birdshot

HORUS BIRDSHOT INFO
THE BOOKLET ELECTRONICS OF 48 PAGES ON THE DISEASE OF BIRDSHOT IN FRENCH.

This booklet contains everything we can find on the disease.
Presentation of the association Horus birdshot, the explanation of the disease, my history, treatments, our supporters, the actions taken, the statistics of the birdshot in the world and of course, list hospitals that treat the disease worldwide) This list is in principle already more up-to-date because she lives every day and you can find it on the internet site).
It is a book which is available for download.
Friendly,.

Sylvain cute
Founding President.

FACEBOOK

ACCESS to the asso HORUS BIRDSHOT on FACEBOOK group

facebook page link

make a donation

Everything what we fund is done completely privately, because although we are an association law 1901 approved, we have no public funding.
We need you, indeed.
Horus birdshot is:
-100 partner hospitals in nearly 25 countries
-130 doctors
-Contacts in more than 50 countries
-More than 2000 people who follow us on social networks
-More than 25000 visits on our website
-Of genetic research on the birdshot since November 2018
-Ophthalmologists, immunologists, researchers, specialists in genetics
-Partners
-Members
-Donors

petition ald Mrs. Agnès BUZYN mail

operation trip to birdshot

OPERATION trip in BIRDSHOT, (follow-up on our facebook page)
50 most beautiful sites to see in the world, but with the view of a person with the type birdshot choroiditis, or disease of birdshot.

As part of the awareness of the disease, it seemed interesting to involve all our friends in the life of a person with a birdshot, which would have the chance to travel the world.
Of course, the photos will be the most representative possible of this quevoit this last.
I would ask you therefore good see share as possible these images, and this, in order to inform as many people as possible.
This operation will also campaign donations to the research assistance (we are an association law 190 approved entitlement to tax deductions, so be generous!).

Happy travels to you all...
Trip n ° 1 to come...

sincere friendship
Sylvain cute
President Horus birdshot.

THEY ran the diagonal of fools for HORUS BIRDSHOT.

ACCESS to the asso HORUS BIRDSHOT on FACEBOOK group

facebook page link

Twitter

ACCESS to THE asso HORUS BIRDSHOT ON FACEBOOK GROUP

facebook page link

Living with uveitis

interview ALLO DOCTEUR 10 2016

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